I remember reading your previous AMA!
My niece (also named Lilly) who I am very close with was diagnosed with Zellweger syndrome a few months after birth, she was given a life expectancy of 3 and is approaching that age. The death of a child is extremely difficult and I would like to do as much as possible for the family during this time. So what sort of support from family and friends was most appreciated or helpful?
100ivory62 karma
I remember reading your previous AMA! My niece (also named Lilly) who I am very close with was diagnosed with Zellweger syndrome a few months after birth, she was given a life expectancy of 3 and is approaching that age. The death of a child is extremely difficult and I would like to do as much as possible for the family during this time. So what sort of support from family and friends was most appreciated or helpful?
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