I have Alport Syndrome and while my kidneys are functioning right now (well partially anyway) it is just a matter of time until ESRF sets in. I have known for most of my life that this would someday come and my mother was on dialysis for many years. I don't really have a question but i just wanted to say best of luck to you man. I have seen first hand how hard it is to cope with and I have been preparing my whole life for this eventuality. My only consolation is that if I had been born a generation earlier without the advancements to delay its onset and subsequent dialysis (if needed) I wouldn't even be here right now. I hope you find a donor asap.
Alligator-Al5 karma
I have Alport Syndrome and while my kidneys are functioning right now (well partially anyway) it is just a matter of time until ESRF sets in. I have known for most of my life that this would someday come and my mother was on dialysis for many years. I don't really have a question but i just wanted to say best of luck to you man. I have seen first hand how hard it is to cope with and I have been preparing my whole life for this eventuality. My only consolation is that if I had been born a generation earlier without the advancements to delay its onset and subsequent dialysis (if needed) I wouldn't even be here right now. I hope you find a donor asap.
EDIT: bad spelling
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