MySunAnStars

My apologies! I confused the story of someone who commented on your original post with yours. It was that person who had the same surgery in addition to Marfan. I had to go back and check where I'd gotten that from.

As far as major surgery goes, that's kind of what I thought. I hoped on the off chance there was anything we could do to help.

I'm still out on if this is all a dream!

Best of luck!

Has Marfan affected your life in other ways? I have 3 students with the syndrome and it seems to vary in severity.

One is due for a heart valve replacement in the New Year and I've seen the anxiety change his behavior very negatively. I know its different from the surgery you just had, and maybe its silly to ask, but is there anything that helped you cope before the surgery? Or at least not make it any worse?