PrestigeWombat

Wife here!!

If you would like our 501 C 3 determination letter or picture proof of my office I will be happy to post it!

These are the items we let parents pick from for their boxes. They can choose every item or just one. It's up to them. Our goal is to relieve the burden so we don't want to make them have extra junk in their house that they need.

Every single one of these items was recommended to ME by our homehealth nurses when lily was still here earthside. We then discussed with many other home health nurses, as well as NICU and PICU nurses to make sure we had every possible item we could think of that aids in the organization.

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LABEL MAKER: to labeling organizers, whiteboard, and supplies. Having clear labels that are easy to read are incredibly important in emergency situations.

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CLOCK: to help nurses and parents accurately chart without searching on a watch or phone. This was crucial for us with Lily's seizures. That way our nurses could time without any issues or delays.

WHITEBOARD: to keep track of important information for nurses, doctors, and parents. Things like medications, feeds, last stool, last g-tube change, last trach change, their emergency info.

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SURGE PROTECTOR: medical supplies need to be grounded to protect the child.

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SET OF STRAW BRUSHES: cleans out gtube, trach, and oxygen tubing, as well as syringes. Parents only get so many supplies a month so this helps preserve the items.

BOTTLE WARMER: warms up food for the child, most NICU and PICU are equipped with one. Certain formulas won't go through tubes when they are cold and other children can have aversions to cold liquids going int otheir stomach.

SHOE ORGANIZER: hanging door organizer to organize all the supplies the child will have; gauzes, tubing, syringes, etc. This is a designated space for the child's supplies.

SET OF CORD WRAPS: to organize the different cords that the child will have. This helps keep them from getting tangled. Especially if you have really long oxygen tubing.

FILE FOLDER WALL ORGANIZER: keeps medical documents and important documents organized.

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GRASS DRYING RACK: a designated space for the family to dry child's supplies. We want to make sure that the child's items are in a place that is sanitary just for them. this is incredibly important for the child's health.

BOTTLE BRUSH: cleans larger areas that the straw brushes can't.

GTUBE FEEDING BRUSH: for children who have g-tubes; these are great for cleaning out their gtube connectors as they get incredibly sticky and sometimes clogged. This helps prolong the life of the connect. It is more flexible than the straw brush cleaners.

I think that this is a personal choice and that we personally chose zero intervening live-saving measures. so that meant no intubation, no resuscitation, no CPR, nothing. It was all about comfort for lily. Everything we gave and did for Lily was called comfort care. Her oxygen wasn't a life-saving measure it was a comfort measure. So when she was dying we actually Turned up her oxygen, to make sure she was more comfortable while she was dying and just let it happen. we could have prolonged her life by intervening but joey and I had chosen not to. So in a roundabout way, I guess I kind of answered your question. I hope

LABEL MAKER: to label organizers, whiteboard, and supplies.

CLOCK: to help nurses and parents accurately chart without searching on a watch or phone.

WHITEBOARD: to keep track of important information for nurses, doctors, and parents.

SURGE PROTECTOR: medical supplies need to be grounded to protect the child.

SET OF STRAW BRUSHES: cleans out gtube, trach, and oxygen tubing, as well as syringes.

BOTTLE WARMER: warms up food for children, most NICU and PICU are equipped with one.

SHOE ORGANIZER: hanging door organizer to organize all the supplies the child will have; gauzes, tubing, syringes, etc.

SET OF CORD WRAPS: to organize the different cords that the child will have.

FILE FOLDER WALL ORGANIZER: keeps medical documents and important documents organized.

GRASS DRYING RACK: a designated space for the family to dry the child's supplies.

BOTTLE BRUSH: cleans larger areas that the straw brushes can't.

GTUBE FEEDING BRUSH: for children who have g-tubes; these are great for cleaning out their gtube connectors as they get incredibly sticky and sometimes clogged. This helps prolong the life of the connect. It is more flexible than the straw brush cleaners.

These are the items that we give the families to include in each box. Each family gets to pick what they want. That way they are not receiving items that they don't need. Some of these items were thought of by our home health nurses when we came home with lily. Some of them we didn't think of until later, like the gtube feeding brush, when reaching out and getting feedback from parents, nurses, and other caretakers.

over the past two years, we have been asking for feedback on our boxes. the one thing that isn't on this list that has been constantly changing the magnetic labels for our whiteboards that is customized for each individual child. This has been a huge learning process that has taken a lot of discussion with our board, nursing staff across the country, and feed back from our families.

Thank you :) These are what we include in the boxes and each parent gets to choose what they would like.

Love Box Items

LABEL MAKER: to label organizers, whiteboard, and supplies.

CLOCK: to help nurses and parents accurately chart without searching on a watch or phone.

WHITEBOARD: to keep track of important information for nurses, doctors, and parents.

SURGE PROTECTOR: medical supplies need to be grounded to protect the child.

SET OF STRAW BRUSHES: cleans out gtube, trach, and oxygen tubing, as well as syringes.

BOTTLE WARMER: warms up food for child, most NICU and PICU are equipped with one.

SHOE ORGANIZER: hanging door organizer to organize all the supplies the child will have; gauzes, tubing, syringes, etc.

SET OF CORD WRAPS: to organize the different cords that the child will have.

FILE FOLDER WALL ORGANIZER: keeps medical documents and important documents organized.

GRASS DRYING RACK: a designated space for family to dry child's supplies.

BOTTLE BRUSH: cleans larger areas that the straw brushes can't.

GTUBE FEEDING BRUSH: for children who have g-tubes; these are great for cleaning out their gtube connectors as they get incredibly sticky and sometimes clogged. This helps prolong the life of the connect. It is more flexible than the straw brush cleaners.