gudfred

Hey, I had cancer at 19 (although not breast) and am working towards being a genetic counselor in the cancer field. I cannot recommend scheduling an appointment with a cancer genetic counselor strongly enough. I'm sure you have an excellent oncologist, but they don't always have the time to stay up to date with the rapidly changing field of genetics and may not realize the variety of genetic tests that are available for someone in your situation. Hopefully they did all the necessary testing, but it sounds like you are willing to seek out additional information and a cancer genetic counselor is the person with that expertise who can guide you through the process and explain what the results, both positive or negative, can mean in regards to future risks. Feel free to send me a message if you have any questions, I can provide a link to help locate a genetic counselor near you if you're in the US.

does cytoxan ring a bell? I definitely recognize vincristine and being weekly for me

damn straight!

ahh... I should write this stuff down, 2 years later and I can't remember any of these details

Fellow rhabdomyosarcoma patient here (2 years into remission, I'm about to be 22), just wishing you the best of luck with everything in the future! Where was your cancer located? I was lucky to catch it in stage I so maybe that explains some of the radical differences in treatment, but I also had a right hemi-scrotal tumor so it was a very operable location (basically they took out my lucky third "testicle", as well as righty for safety's sake)