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joannasauer3 karma

I also have POTS and I can say with confidence that it is well worth being diagnosed. Although POTS tends to occur in young adults, and the symptoms fade over time, you could also have a relapse of sorts. It's better to know for sure what your condition is, in case there is a relapse of sorts.

joannasauer3 karma

Try compression stockings! They're annoying as hell but helped a lot for me.

joannasauer2 karma

Sorry I'm totally invading this post, but I agree with jen235. Keep going to different doctors to get different opinions on what your diagnosis may be. It took me over 3 months do be correctly diagnosed with POTS. Be your own advocate and keep pushing for better doctors!

joannasauer2 karma

I also have POTS so I just figured I'd share my experience as well.

Every time I go to my cardiologist (earlier in my diagnosis = once per week), they would do an Echocardiogram while I was relaxed, and while I was having an "attack" just to check for any sort of afib.

joannasauer2 karma

Have loved you guys since the start! And my thoughts and prayers go out to Charles, Allie and the entire Trippy/Speed family. If anyone can kick cancer' butt, it's YOU Charles! Much love xoxo