spooky_upstairs

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This is super helpful; I’m still learning how to live with mine. So far specialist Pilates, alexander technique, and low impact exercise (swimming) really helps me too. Well done on the ama, even if it worked out weird!

Or common? The world is kind of shitty, makes sense.

Well, firstly I wasn’t debunking anything — but adding context.

My point was if diagnosis takes ages, and the condition is more common than physicians like yourself originally thought, isn’t it then reasonable that those with debilitating symptoms would then find ways of getting by — and a sense of community — online?

Isn’t that a more reasonable explanation than writing it off because “it’s a trend”? Which, yes , seems shallow.

And how is this “self diagnosis” taking place? Is it people saying they definitely have it and don’t need a doctor to tell them, or that they’re now trying to get diagnosed?

But then your point was “nah”, you say you’re a physician who hates research, and you’re inferring the research I’m referencing is worthless because it’s reported (but not exclusively conducted) by a medical charity, so I’m sure our definitions of what’s reasonable probably differ, and that we’re never going to reach an agreement.

I’m impassioned about this subject because it’s a condition that has largely disabled me. I had to fight for a referral, after which professional diagnosis was swift, and treatment is offering me a new lease of life.

I don’t really care what insults about my personality you throw my way; I pity your patients though, as your bedside manner is sorely lacking but sadly unsurprising in my experience.

I think it depends on the doctor and type of doctor. I had so much trouble getting referred by my GP(s!) but as soon as I was with the consultants diagnosis was really straightforward.