unbridged77

Thank for you for this AMA as I am overly intrigued.

I'm sure this sounds like a simpleton's question, but why have you needed 80 surgeries?

Does your disease have degenerative effects? Can each surgery only be performed under certain time constraints?

I'm so sorry that the growths keep returning. It must be challenging to constantly go through the same process in an attempt to heal. -Do you have any emotional or physical reactions when it is time for you to go into surgery again?

I had to spend a year crowning all of my teeth after they were ruined by the glue from braces, and every few weeks, when It was time to go back, I would start shaking and crying without even really knowing why. This is obviously MUCH less traumatic than your situation, of course, which is why I assumed you might have some type of reaction to the constant need for surgery.