172
I am a 25 year old woman with only one fully developed breast, AMA!
Greetings everyone!
As the title suggests, I have breast hypoplasia (asymmetrical breasts)- which has been noticeable since puberty. I recently had a consultation with a surgeon who diagnosed me with a rare condition known as Poland Syndrome
Feel free to ask me anything.
Here's my proof
JealousUnicorn61 karma
Just wanted to say you’re really brave for putting yourself out there and bringing awareness about Poland Syndrome. I also have it and it ruined my self-confidence literally for life. Thankfully, I found an amazing plastic surgeon in adulthood. How did you get through school and what has been the greatest challenge for you? Also, if I can provide some advice on an implant, please don’t do it. Ask for a “fat transfer” or make the big one small, I did an implant and developed breast implant illness which was killing me. (Look that up if you’re not familiar)
lajoyanoir34 karma
Oh wow it’s so nice to meet someone else with PS! I relate so much with the self-confidence thing. I teeter between embracing them and being ashamed of them I won’t lie.
I talked about how I got through school in another comment but I basically got teased by a couple of friends about them and that led to me stuffing my bras and wearing a normal bra and sports bra on top. We had a school uniform (private Christian school) so “luckily” I wasn’t in many situations where my chest was exposed. I was mostly focused on other more grave personal issues in my life to care most times.
I’ve heard of breast implant illness before, especially the past few years as influencers are getting theirs removed :( I’m very conflicted because I’ve heard fat transfers don’t always produce the desired results and may change over time. I do want what is best for my mental and physical health tho so I will definitely take what you’re saying into consideration.
lajoyanoir5 karma
My mom built a tennis court in our yard at home so I basically grew up playing it with my family
lajoyanoir2 karma
Lol oh don’t worry, one day I’ll do an AMA on the scary things they put me through and I’ve seen. All parents have their flaws.
lajoyanoir52 karma
I personally haven’t seen any local companies make them so I just shop for the larger breast
diggertb29 karma
This is genetic in my family. My uncle and sister had this. Have you considered therapy or have you adjusted well to it? My family members were clearly affected by it socially.
lajoyanoir32 karma
I’ve never really considered therapy specifically for this but it’s definitely something I’ll look into now that you mention it
aBelligerentRacoon29 karma
OP - I’m sorry. Women have to wear these badges publicly.
If this was some dudes balls, he’d just tell his partner, “yeah - that’s Hank and that’s Frank. Hank lifts, Frank doesn’t - let’s bang…”
But you have to live it in the open. Good luck, you look lovely anyways and at least you can work this out with some plastic surgery? Or just be you and don’t worry about it?!
Good news is that there is a solution if you want one…
lajoyanoir33 karma
I’ve met so many many with asymmetry down there or just one ball altogether so you’re right haha! It never bothered me and made me feel less “abnormal” so it’s cool :)
sleepruleseverything28 karma
What has your mental health been like in regards to this, during puberty up until now? Did you try to hide it for a while with prosthesis? I had something similar, and it caused me a lot of depression and angst during my younger years. Wish I could turn back time and convince myself it’s mostly superficial, and that people’s parts come in all uniqueness.
lajoyanoir53 karma
I think I only really became (self)conscious of my breasts in high school when my “friends” pointed them out and made fun of their asymmetry. From that point on I made sure to stuff my bras with whatever I could find to try mask the difference. I held on to the notion that they’d even out and had other pressing issues that kept my mind off of them for a while but the past few years have been extremely difficult overall for my mental health and I won’t lie, they’ve added to the stress at times. I constantly compare myself to other women and because I do online SW, I’m seeing “better” all the time. Being “body positive” is wayyy easier said than done and I have the utmost respect for anyone who publicly embraces anything out of the norm. I hope to get to that place some day!
Karaja414 karma
I'll be the curious pig and ask, is that just a one implant job or would you be getting one on booth breasts, or would this be a completely different kind of surgery all together?
lajoyanoir21 karma
I need to go for another consultation to hear exactly what will be done but it sounds like it will be a specialised surgery/case with different procedures on either side
jbmaun18 karma
Do you find with the weight differences you have a hard time standing up straight / do you have any back issues?
lajoyanoir19 karma
Not at all! If I ever do appear to have bad posture that’s just due to my own bad habit or slouching in class lol
TwoIdleHands13 karma
I’m a small B, in my 40s. I have large chested friends with back problems, they have permanent divots in their shoulders from bra straps, my aunt got a reduction in her 50s. I’ve had two kids and still go braless in the summer. You’ve said you’re looking at an implant and a small reduction/lift. Get what you want but think about the long term effects of large breasts and talk to your surgeon. One and done is good and you’ll be with your new girls the rest of your life. Get ones that you can be happy with long term!
lajoyanoir7 karma
You’re right! The goal is to be comfortable and happy in the long run. I have a lot of thinking to do for sure
lajoyanoir7 karma
I have no idea 🤷🏽♀️ I’ve only had the diagnoses for a few weeks so I need to do more reading up on it/consult my doctor
PauseAndEject3 karma
After reading the link you provided, I'm surprised that your diagnosis is so recent! (Although, I've experienced my fair share of oblivious doctors, so maybe not too surprising...)
From your link:
In those with the condition, there is typically unilateral absence of the pectoralis minor and the sternal or breastbone portion of the pectoralis major.
Have you ever had a chest X-Ray prior to your diagnosis? I am guessing your case is quite mild compared to others, as I imagine such absences or even underdevelopments of those muscles and bones to be pretty obvious to medical professionals.
Thanks for sharing, I'm officially counting Poland Syndrome as the new thing I learned about today :)
lajoyanoir7 karma
To be fair I’ve never really consulted a doctor about my breasts or brought it up as an issue and the only reason I even diagnosed was because I went to see a plastic surgeon and he happened to be familiar with it. I also come from a place with not the best medical professionals so I was never gonna get a proper diagnosis back home.
I get yearly chest x-rays as a part of my visa requirement and only in 2016 do I recall it mentioning abnormalities. I’ll have to dig up the report to see what exactly it said but I’m certain it was referencing the asymmetry in muscles so you might be right
Askymojo10 karma
I never knew that x-rays were required for VISAs. Are they checking for tuberculosis?
PauseAndEject3 karma
The plot thickens! I wonder how far back in your scan history abnormalities can be seen with the advantage of hindsight.
One thing I have had luck with in the past when it comes to medical scans is to request a copy of them in "DICOM format" - DICOM is a standardized file format for medical imaging & communications data, literally files you can open on Windows or Mac at home (with the right free software installed) that have a ".dcm" file extension. The DICOM data is the most complete set of information about your scan available, literally you will be working with the exact same if not more data than your doctors. I had an MRI done last year and the DICOM data let's me see every individual image in the set, details about the machine at the time that image was taken, and even make a 3D reconstruction of my head! X-Rays absolutely use the same format - all medical imaging systems do, unless there's some obscure ones I don't know about.
I can't speak for everywhere in the world but many places will have DICOM data going back years, filed against your patient file, so it should be simple enough for your G.P. to collate all your historical X-Rays and give you complete copies of the .dcm files.
Then you would be able to load them up in chronological order and compare/contrast any significant developments between scans from the comfort of your own home! I'm familiar with the process of loading and viewing the files now, so if that is something that interests you but you don't know where to start, I'd be happy to assist if you can obtain the files :)
lajoyanoir3 karma
I was given a CD with the report for that 2016 scan, I’m going to assume everything you just mentioned is on there lol! It was so long ago and I never even looked on it but I’ll try find it and then send you a copy of whatever I find. Thank you for your help!😊
TheWasabiEyedrops10 karma
Based on the link in the post, it states that people with this syndrome also have underdeveloped muscles and ribs, do you have any other abnormalities(such as missing ribs or shorter fingers)besides the underdeveloped breast?
lajoyanoir19 karma
The breast asymmetry and underdevelopment is the only visible deformity I have.
ThundrousProphet8 karma
My wife has Poland syndrome and it has affected her entire life so thanks for spreading awareness. Do you tend to have a lot of chronic pain as well and does anything help you? Thanks 😊
lajoyanoir7 karma
I only get aches and pain on the side with the bigger breast but I’ve always associated it with the size rather than PS but I guess I should get a medical opinion about that when I can. I usually alleviate the pain by laying down or putting on a good fitting bra- basically adding support or relief. Probably not helpful advice, I’m sorry :(
cellenium1256 karma
Have you thought about breast implants or reduction of the other side?
cellenium12512 karma
That’s great. Of course you are beautiful as you are but we all crave symmetry. most of us get braces, this isn’t any different.
fliberdygibits5 karma
I know most women have one breast slightly larger than the other. Is this just an extreme of that same thing or is this fundamentally something different?
lajoyanoir17 karma
My asymmetry is due to a congenital deformity unlike milder cases of asymmetry which are natural
lajoyanoir7 karma
Simple touching no but more intense stuff- the smaller one is more sensitive
Prodiuss2 karma
So just as many nerves, but concentrated into a smaller surface area?
Another question. If you became a mother, does those condition affect the ability to breast feed?
lajoyanoir5 karma
Hmm I don’t know the science behind it but I’ll say yes that makes sense lol
I’ve definitely read somewhere that milk production on the smaller breast (it is tuberous) may become an issue.
lajoyanoir31 karma
Not in the slightest, men irl really don’t care/mind. None of my long term ex bfs even brought it up! I will say it contributes to my own personal insecurities which may play into how I give/receive intimacy
Diver_Gullible3 karma
Idk if this is a weird question but is lactation going to be affected?
PhilinLe3 karma
If there was a magic option to make the smaller one bigger or the bigger one smaller, would you take it?
GabTheRandomGuy3 karma
At what age did your breast start developing and when did you first notice the asymmetry?
lajoyanoir5 karma
So around 12/13 is when I started developing but the asymmetry only became apparent after 14
lajoyanoir17 karma
Plastic surgery is the only real “treatment”. Some opt for an augmentation and insert implants to even them out but a reduction and lift to the larger breast is also an option.
JoeMorgan763 karma
So, and please correct me if I’m wrong, you go bigger adding an implant to one side and a lift to the other? Or you go smaller with the larger one having a reduction and a lift to them both?
lajoyanoir9 karma
I think each case is different and it depends on the severity in asymmetry (both size and shape) as well as personal preference. In my case it was recommended that I get an implant in the smaller one only and that the larger one would be lifted and reduced slightly.
disdkatster2 karma
A side to this topic but does anyone know how much it cost to remove breasts or reduce them in size? How painful is it if you are not removing lymph glands? I know when you are young they are a big part of self image but I would love not to have mine. I'm 74. We actually had gym exercises in school where we chanted "We must, we must, we must develop our bust!". I have been 36C since my early 20s and now wish I were as flat chested as possible.
lajoyanoir4 karma
I think it depends on where you get the reduction done. I live in South Africa and it costs about 73000 rand which is $4000. I wouldn’t know much about the pain level but I know the recovery time is quite short
lajoyanoir8 karma
Generally no but I do get what I think is normal discomfort associated with larger breasts on the left side
kitrookie2 karma
i also only have one fully developed breast. i haven’t been formally diagnosed, but have done a lot of researching and operate on the assumption that i have poland syndrome, too.
i’ve been self-conscious by this since i was 13 and it started to become noticeable. i never go braless, wear low cut or strapless shirts. i spend a lot of money on inserts, and haven’t been able to find one i really like. do you have an insert you’ve used and liked? or have you just been able to overcome the self consciousness associated with it?
lajoyanoir1 karma
I’m sorry to hear that love, I know the struggle but it warms my heart to know that we’re not alone, we’re in this together🫶🏽 I am also limited in my fashion choices because of this condition :( So up until very recent I just used to stuff my smaller boob with cloth or tissue but I bought this silicone chest pad which has been very comfy and feels more natural (I don’t advocate for buying on she*n but I’m limited by my financial choices and location).
So my insurance company is pretty basic and I’m on the student option which makes it even worse- they rejected my request for coverage :/ But I have heard that reductions are covered in some cases. My surgeon said my case was in the extreme and would’ve warranted coverage but alas. It’s about $5000 here so I’m slowly raising funds to get the procedure done.
Malf15322 karma
That is a conversation starter. Have you met any guys that just want to know if you're okay?
lajoyanoir1 karma
Lol two French guys (on different occasions) just paused when they saw it and asked why it’s like that, “I was just born like that” I said, then we proceeded to you know what. Other than that, no one ever brings it up or cares
al32372 karma
This is the first time i am genuinely interested in seeing someone breasts for pure curiosity and nothing sexual, do you have different sensibility in each one?
lajoyanoir2 karma
Lmao happy to intrigue. By touch they’re equal but nsfw activity is more intense on the smaller one
lajoyanoir1 karma
The left is slightly bugger in circumference but not by a huge margin. They’re both large lol
Sleepymuff2 karma
Do you have any plans to use the surgery options? They can be so expensive so…
lajoyanoir1 karma
It’s very expensive but I’m saving up! I’m hoping to get them done before October 🤞🏽
Robobvious2 karma
So you're considering augmentation to bring them more in line with each other, have you set your mind on that already or are you still weighing your options? Before doing so I might suggest having a sexy photoshoot done just for yourself. Everyone should love themselves and feel comfortable in their own body and a good photographer can help with that! Nothing wrong with wanting something different though either, everyone has to make the choice that's right for them and I wish you luck as you're figuring that out. Just know you're still beautiful as you are now!
lajoyanoir1 karma
I don’t think I’d feel comfortable in front of a photographer but I’ve taken plenty of my own :) thank you 🙏🏽 🫶🏽
lajoyanoir1 karma
Feeling like an alien and not being able (or being comfortable enough) to wear certain outfits
flck1 karma
Lots of people asked about surgery and implants, kinda leaning towards increasing the size of your smaller beast.. Just curious - what do you want?
Between option A - reducing the larger breast or B - increasing (or getting implants) in your smaller breast?
Your smaller/right breast is perfectly normal for many women, and your left is something other women get implants to achieve... tough choice!
fliberdygibits-1 karma
Also PLEASE tell me you've had the opportunity to flip the "Size doesn't matter" script on it's ear?
lajoyanoir26 karma
My most used phrase is “best of both worlds” (like Hannah Montana) and I’ve recently started saying “one girl, two cups” (if you know what I’m referencing there, sorry for the gross flashback lol)
lajoyanoir10 karma
So everyone else explicitly marketing their books, companies, documentaries, products etc… on here is okay but I, who has made no mention of that in the slightest and kept it to my profile, am “shilling”? 👍🏾
runner191861 karma
How many times have people made the biggie smalls joke to you?
View HistoryShare Link