EhlersDanlosSucks

I sleep less than two hours a night, in 15-20 minute segments. I'm often awake for several days at a time without any at all. I had one sleep study that was said to be "useless" because I didn't sleep. Do you see this often? Any suggestions? (I have Ehlers-Danlos and Chiari.)

True. I have vEDS. I know literally countless with hEDS but I've never met another vascular.

I came to ask the same thing. My 18 year had a legal name change earlier this year, two days before SS offices closed. Now he can't get his card, driver's license, insurance, or register to vote.

Thank you! Yes, POTS came with the EDS. I moved recently and will definitely ask about this when I get set up with a new med crew here.

That is helpful! Thanks!