You sir, have been the first to bring a tear to my eye in a very long time.
You remind me of my parents. Quite similar to Emily, I also have Type II SMA. I am 21 years old now and I can tell you that I would not be where I am today without my family. I don't know what else to tell you, but you and your wife are doing everything right! From anecdotal experiences, there will be ups but there will also be downs. What is most important though, is that the family be strong and always there for her when she needs it most. Treat her like you would to any other human being.
You already seem to have the most part covered so all I can say is thank you for spreading the word of SMA out there. We need more parents like you as well, with an SMA child or not.
HugoLoft11 karma
You sir, have been the first to bring a tear to my eye in a very long time.
You remind me of my parents. Quite similar to Emily, I also have Type II SMA. I am 21 years old now and I can tell you that I would not be where I am today without my family. I don't know what else to tell you, but you and your wife are doing everything right! From anecdotal experiences, there will be ups but there will also be downs. What is most important though, is that the family be strong and always there for her when she needs it most. Treat her like you would to any other human being.
You already seem to have the most part covered so all I can say is thank you for spreading the word of SMA out there. We need more parents like you as well, with an SMA child or not.
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