MrBeardmann

Wow, that was deep. No family should ever have to go through the loss of a child. I'm so sorry. Thank you for opening up on such a tough subject. You are a brave family.

With this disorder, being so young and fragile what are the main causes of death so early on? Is it the seizures? What is the median lifespan of those suffering? I'm so sorry for your loss. I have a 3 year old and it would be absolutely devestating if anything happened to him . I will be donating to your cause.

Thank you.