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Mursch3 karma
Hello fellow Kallmann patient! I hope I am not too late for this. How do you cope with Kallmann? Did you get help from a therapist? I feel like Kallmann destroyed my life, I am demotivated, cant get myself to keep up the treatment (Pregnyl and Menopur) and I just feel hopeless since nobody in my region seems to have this condition.
Mursch2 karma
As someone that has anosmia aswell ... there is a pleasent part about spicy food? That explains so much xD
Mursch2 karma
Well I guess you know one now (kinda). ;D I will think about joining the Facebook group(s) but my old facebook account is kinda weird since I barley ever postet anything and never used a profil pic (I think you can guess why). The treatment itself is fine, its just that it can be so exhausting to get myself to do it. There is simply no motivation in me for anything and having to prepare might not take a long time but it feels like it takes forever. Do you use regular syringes or something like people with diabetes do?
Mursch2 karma
I live in Austria so there should be around 400 people with Kallmann Syndrome in the country but I havent found any groups or stuff like that online, yet.
And yes, I should really get to see a therapist before it´s too late. About the facebook thing from the other comment, I might give it a try, thanks!
Mursch3 karma
Sounds good. Thanks for the help, I appreciate it!
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