ftrotter

How do you tell the difference between someone who is malicious vs someone who is just totally incompetent? What are the most telling data points that signal to you "this doctor is not normal"?

Are there any personality traits that you see show up in the medical professionals you catch?

-ft

I wonder if you could explain a little about the decision to marry/date someone that you knew was going to die? I know its not your AMA, but I thought I would ask?

Glad to hear that the book has this level of specificity. I will definitely pick up a copy!!

Thanks

Hi, I am a computer specialists who builds tools for patients and I have started to collaborate extensively with the society for participatory medicine (s4pm for short) which is the nonprofit most closely aligned with the epatient movement. There are many in the rare disease community who eventually come to participate in the epatient movement.

But sometimes I wonder if I (and the society) are working on projects that are really meaningful. You are obviously technically sophisticated enough to be on Reddit... So what software/hardware tools do you feel are "obvious" and would really help you, your wife and/or your daughter, ut either don't exist yet or are too expensive for some reason?

How was Internet/cell phone access on the trail? DID you carry a cell phone, or books to read at night? Would it be realistic to take a Kindle or something like? Did you ever consider mucking about with solar chargers? Just wondering if I could do this and sustain my Internet addiction?

Semper Fi.

-ft