hg1223

I also lost a child, Charlotte, at the age of 5 months from SMA Type I. I thank you for being so brave and discussing this devestating disease so openly. I wish much love to you and your family.

My daughter met you in NYC and gave you the Edgar Allen Poe Pop-Up book. To be honest, before she met you, I did not know much about you. I knew you were an author but had no idea how much impact you are having on my daughter and her friends. I am so happy they have you as inspiration and am wondering if you really understand the wonderful impact you (and Hank) have had?