throway_nonjw

So, the light and the tunnel, did that happen for you? Sometimes it does, sometimes it doesn't, just curious as to your take.

Have you or your doctors found out if there tests for experimental drugs for treating sarcoma out there? It can't hurt to ask.

I hope you hang in there. Read some Discworld. Listen to some good music from the 70s and 80s. Catch some movies you may have missed. Make the most of what time you have!

Hang in there!

Are you going OK with the haemo?

I only asked the question to say this. My son had nephrotiuc syndrome when he was one (left his mother and I a complete mess, but that's another story). We managed to keep him okay until he left home, and then he didn't take care of himself and after a few years ended up on PD for a couple of years (the bags! the boxes!) before it stopped being as effective. They moved him to haemo end of 2015, putting in a fistula, having him go to a clinic 3x a week for dialysis, until they provided him with a machine that performed dialysis overnight. Three months ago, a kidney suddenly became available, and transplanted fairly quickly. Since then he's picked up fairly quickly and his life is much closer to normal than it has ever been, and he's getting ready to be a dad for the second time in April. He's 27.

My point is, hang in there. It can take time, but your turn will come around, and when it does, with the way medicine is improving these days, it'll be good. Good luck.

Which of they ones you tested would you never do again, and why, and which did you feel was the most beneficial?

I can't imagine why you wouldn't want to drink tobacco garlic pee again. :D